tv.ipopi.orgTreating Primary Immunodeficiencies –

IPOPIIPOPI is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide working in collaboration with patients, doctors, politicians, regulators, pharmaceutical industry and other relevant stakeholders. IPOPI is the Association of national PID patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration. Visit our website at www.ipopi.org IPOPI IMPROVING PID PATIENTS’ LIVES. WORLDWIDE. Access to care Access to care DIAGNOSIS QUALITY OF LIFE CLINICAL MANAGEMENT WHAT ARE YOU LOOKING FOR? 02:15 Treating Primary Immunodeficiencies PUBLISHED 11 November, 2022 Related posts: PID testimonial – Spanish Immunologist COMMENTS SHARE COPY EMBED CODE iframe data-cookieconsent="marketing" width="853" height="480" data-src="https://www.youtube.com/embed/0LuCybhj-Vs" frameborder="0" allowfullscreen/iframe You must be logged in to post a comment. Related posts: PID testimonial – Spanish Immunologist IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies 14:55 In this IPOPI mini-documentary, we look closer at the world of primary and secondary immunodeficiencies. By blending personal narratives and global perspectives, we uncover the similarities, differences, and diagnostic hurdles of primary and secondary immunodeficiencies. IPIC2019 – Dr Enrique Terol 10:36 PIDs in Africa – French version 2:25 Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry. PIDs in Africa 02:25 Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry. PID GENIUS Tutorial 03:27 IPOPI has developed PID GENIUS for you, to support you and other persons living with primary immunodeficiencies. PID GENIUS is a dynamic App that plays the role of a personal assistant that will help you keeping track of your treatments, day-to-day symptoms, most important documents in an easy way. It is meant at reducing paperwork and facilitating the discussion with your doctor. Patient testimonial – mother of a SCID patient 2:09 Cristina’s daughter was diagnosed with SCID and underwent a bone-marrow transplant. PID testimonial – Parents and PID patient 2:14 Marco and Yoli talking about how paediatric care for PID patients could be improved Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment 1:20 Importance of individualized treatment for PID patients. Adrian Górecki, Poland, an XLA patient, sharing experience with different PID treatments. 1:41 Importance of individualized treatment for PID patients. Kees Waas, Netherlands, father of 2 XLA patients, with his family experience on PID treatment 1:53 Importance of individualized treatment for PID patients. PID patients health can improve with a change in treatment. 1:51 Importance of individualized treatment for PID patients. Mother’s experience with the treatment of 3 XLA children 2:11 Importance of individualized treatment for PID patients ABOUT IPOPI SPONSOR WWW.IPOPI.ORG Copyright © 2024 IPOPI. All...